Doctor's Visit

Today's visit to Primary Children's went pretty well!

Robyn's weight is back to where it was when she was admitted there a month and 1/2 ago. Her Carvedilol dosage is as high as it will get. Her heart ejection fraction is at 36%. So, she is improving. Not as quickly as they had hoped, but it IS continuing to improve. :) She's still on 5 meds in the morning and 3 at night with an added med of 1/2 a baby aspirin each day.

She still acts like pre-hospital Robyn, so they said that we'll just continue on the same path we are on for the next month. Since her heart medicine is as high as they can go for her weight / age, there won't be an adjustment appointment. Just another check up in one month!

As always, thank you for your kind words, love and support.

Hello from Robynson!

If you don't already know, I have a calling in Primary. I have the Primary song "Hello, Hello, Hello, Hello - we welcome you today" as a ring tone for people I know thru church (which is basically everyone in Provo). :) Also, my kids and I will go around the house singing it - changing the words to 'Clean up, Clean Up..." or "Thank You, Thank you..." or "Hungry, Feed Me..."

Anyway, so Robynson has picked up on that. It's her favorite thing to sing, dance to, listen to on the radio or my phone. Today, I was able to catch it on camera and thought I would share it with all of you to prove that she seems fine...

SEE?!!!

She really doesn't act / look sick! :)

Thank you for all of your love, prayers and support! :)
(If you are emailed this, you have to go to her site to view it... robynhardman.blogspot.com)

Hospital Pictures

I finally downloaded some pictures from my actual camera today. There were still pictures of Robynson from when she was in the hospital. I thought I would share them here.... I posted some that were from my camera phone on our family site, but none really here...

AT UVRMC,
BEFORE LIFE FLIGHT

LIFE FLIGHT

PICU FLOOR,
PRIMARY CHILDREN'S HOSPITAL

OFF THE PICU FLOOR!,
PRIMARY CHILDREN'S HOSPITAL

GOING HOME

People have been great to us. Everyone asks how she is. Everyone offers help. I can't express my love, appreciation and relief it has been to know that people out there care for us and want to help in any way possible... :) We love you all...