Today's visit to Primary Children's went pretty well!
Robyn's weight is back to where it was when she was admitted there a month and 1/2 ago. Her Carvedilol dosage is as high as it will get. Her heart ejection fraction is at 36%. So, she is improving. Not as quickly as they had hoped, but it IS continuing to improve. :) She's still on 5 meds in the morning and 3 at night with an added med of 1/2 a baby aspirin each day.
She still acts like pre-hospital Robyn, so they said that we'll just continue on the same path we are on for the next month. Since her heart medicine is as high as they can go for her weight / age, there won't be an adjustment appointment. Just another check up in one month!
As always, thank you for your kind words, love and support.
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Mandy,
ReplyDeleteOh my gosh I haven't blogged in FOREVER! I finally got online to see what everyone was up to and saw that little Robynson has been so sick. Going through NICU & PICU with each child (twice each) I know the stress and worry that can occur. I am so sorry I did not find out sooner. Know that you'll be in our thoughts and prayers and if you need anything at all (even if it's just to have someone to talk to) let me know. I'm so glad she's on the mend--we'll continue to think of you and your family.