Today was Robynson's first appointment with the Cardiology department at Primary Children's Medical Center since we left there just over a week ago...
Her stats are improving. The ejection fraction of her heart went from functioning at 23% to 28%. It is a small improvement, but it is still an improvement. :) Also, we can cut 2 of her medicines down to just 1 dose a day (instead of 2), while 1 other medicine's dosage was doubled (and will be again probably at our next visit). The biggest improvement, however, was her attitude.
Instead of screaming the whole time so that no one could listen to her heart, she only screamed a little bit of the time. Instead of wiggling and screaming and pulling the "stickers" off the whole time they did the Echo, she only did it for a little bit. She then became distracted with the Imagination Movers (thank you, Disney!) And instead of crying hysterically when they checked her blood pressure, she barely noticed it. THANK YOU Nurses with bubbles!!!
Today we also met with and signed up for Medicaid. Still don't know if we'll be approved, but we're hoping so! Keep your fingers crossed and your prayers coming! :) We also might be able to / have to apply for Disability Medicaid for Robynson. We'll find out and if so, we're hoping to be approved!!!
Our next appointment is on August 28th. Until then...
We Love You!
Thank You!
Keep Her In Your Prayers!!!
(and don't come over if you're sick!) :)
Thank You!
Keep Her In Your Prayers!!!
(and don't come over if you're sick!) :)
Yay Robyn! Way to be a big girl! Glad you're feeling good better! We miss you!!
ReplyDeleteMandy- Good luck with the Medicaid! Just keep bugging them until you're approved!
So glad to hear that things seem to be progressing well. I hope it won't be long before you get enough good news and progress to put your mind mostly at ease.
ReplyDeleteI've been working so much recently, life has been crazy. But I'm home sick, sick, sick so I get to catch up on blog-reading! Hope you don't catch it through the internet!