Remainder of our Stay

I'm typing this from home (YAY!) but I wanted to finish out our stay at Primary Children's here...

We were moved to the Surgical floor on Wednesday afternoon. That's also the day that Jeremiah decided to stay at our house for the night. He needed to get some things from home for work, wash some clothes, pay some bills and just get a few things done at home. Robyn and I made the trip up to the Surgical floor where they have DVD's - which made Robynson's day. She's been missing her Spongebob and Thomas shows. :) We watched some movies and took it easy. On the PICU floor, they kick everyone out from 7-8 am and pm. On the Surgical floor, they didn't. That's nice because Robynson decided to sleep til around 9am each day there. :)

Grandma and Grandpa Barlow (my parents) came and visited and then took me out for dinner so that I got a little time away from the hospital. Colleenia and Kaylee met us there, too. They couldn't come to the hospital because the last thing they need is to catch something from Robyn or the hospital and take home to Sean! But we got to visit at Sizzler and enjoy each other's company for a little bit. Colleenia had been doing some 'bargain shopping' and bought a bunch of school clothes / supplies for the boys so that I didn't have to worry about it. :)

Thursday morning Robyn had another Echo. It showed that her heart was functioning at 23%. So we have gone from 20% to 13% to 23%. Different medicines and we're hoping that the combo we have now (which are all oral!) will help her to continue to improve.

Grandma and Grandpa Hardman (Jeremiah's parents) and Draysen came over and played on Thursday night. Robyn was enjoying sitting on Mamah and Papa's lap, eating candy and ice cream and playing Legos with Draysen. I think we gave her a little too much sugar because she didn't go to sleep til around 1am that night! She kept pulling out the wires on the monitors, jumping up and down in her crib and talking. Yeah. My not sick acting, but still sick little girl is completely back to her normal acting little self.

Friday we had an Xray early in the morning. They let her leave the room for the Echo on Thursday and this Xray. Robyn loved the wagon she rode in to the appointment. She also loved the fishies on the walls. She kept wanting to go outside to see the fishies, but she was still on Precautions, so they wanted us to stay in the room as much as possible.

They came in around 10am and told us that we would probably be going home that night. I called Jeremiah and he left work to come join us (and pick us up since we were living out of our van this whole time). He got to the hospital around 1pm. Robyn was super excited to see her daddy. :) They both took about a 2 hour nap - waiting to be discharged. I finished applying for Financial Aid but was too excited to sleep. I tried to catch up on some of my missed computer time. :)

The last things we did before leaving the hospital was take out the PICC line, sign discharge papers, and pick up just over $200 in medication. Enough for 2 weeks. YIKES! We have another doctor appt on August 19th to do another Echo, Xray, and meet with the Cardiology doctor. We're going to check out how the meds are working and hopefully see a HUGE improvement. :)